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how common is lupus in males

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What is the rate of Lupus in men?

Between 4 percent and 22 percent of the 1.5 million people living with lupus are male, according to the Lupus Foundation of America. The rate of lupus in men seems to be increasing. 1,3 Lupus is usually diagnosed later in men than in women, often between ages 50 and 70.

Are women more prone to lupus than men?

The Centers for Disease Control (CDC) uses different statistics and estimates that there are 4 to 12 women with lupus for every 1 man. The College of Rheumatology simply states that lupus occurs 10 times more often in women than men. Clearly, many more women are diagnosed with lupus than men.

What age group is lupus most common?

Lupus strikes mostly women of childbearing age. However, men, children, and teenagers develop lupus, too. Most people with lupus develop the disease between the ages of 15-44.[2]

Why do men get Lupus?

Low levels of androgen in men are thought to connect to the development of the disease in males. Whatever the reason, it is important to remember that lupus isn’t solely associated with women and that men can get the disease, too. So if you’re a man and you’ve reason to suspect you could have lupus, speak to your health care professional.

Does having lupus impact my testosterone levels, ability to perform sexually, or potential to become a father?

Having lupus doesn’t diminish your testosterone levels, ability to perform sexually, or potential to become a father. However, certain medications used to treat lupus, such as cyclophosphamide (Cytoxan), can affect your testosterone levels and active sperm count, which can impact fertility in a negative way.

Is lupus more severe in men than it is in women?

Research suggests that men who have lupus experience a more severe form of the disease. The scientific and research community does not have a shared and agreed-upon answer as to why this appears to be the case. More research is needed to answer the many questions around lupus and guide physicians in their efforts to diagnose and treat lupus in both men and women.

What are the disparities in lupus diagnosis and treatment among men in comparison to women?

Some studies have found that men are often older than women at the time of diagnosis.

How can I explain my lupus diagnosis and symptoms to other people?

Explaining lupus is difficult for most people with the disease, given its often invisible symptoms . But it can be especially difficult for men because of the stigma that only women get lupus.

What can I do if I often feel depressed due to my lupus diagnosis and symptoms?

Lupus can bring about many challenges -- there is no shame in being overwhelmed with a variety of negative emotions about the uncertainty of what each day will bring. It’s also normal to grieve for the loss of the life you had before lupus.

What are my options if there are no in-person support groups in my area?

If there are no support groups in your immediate area, LupusConnect is a great way to build an online community of other people -- including other men -- who are navigating life with lupus. People who join can ask questions, reply to posts by other members, and read about others’ experience in a safe and comforting community.

What causes chest pain when taking a deep breath?

Serositis (inflammation of the serous membrane that often causes chest pain when taking a deep breath) Other common signs and symptoms of lupus can include: Read more about lupus symptoms. Experts don’t know what causes lupus or why it affects more women than men, but it and other autoimmune diseases do run in families.

What is the name of the condition where a man gets an extra X chromosome?

Klinefelter syndrome is a condition in which a man gets an extra X chromosome. Men usually get one X chromosome each from their mothers and one Y chromosome each from their fathers, but those with Klinefelter syndrome are XXY, which is also known as karyotype 47,XXY. 5

How many people have lupus in 2019?

November 15, 2019. While women are much more likely to be diagnosed, men do develop lupus. Between 4 percent and 22 percent of the 1.5 million people living with lupus are male, according to the Lupus Foundation of America. The rate of lupus in men seems to be increasing. 1,3.

Is Klinefelter syndrome more serious than lupus?

Klinefelter syndrome causes several health issues, including a higher risk of developing lupus. Men with Klinefelter syndrome also tend to have a more serious form of the disease than women with lupus do, but a less severe condition than the lupus of other men. 2.

When is lupus diagnosed?

Lupus is usually diagnosed later in men than in women, often between ages 50 and 70. Doctors think that men may receive a later diagnosis because lupus is considered a “woman’s disease.”

Is Lupus more serious in men or women?

However, compared to women, men tend to have more serious kidney, serositis (inflammation of the tissues lining major organs), central nervous system, vascular (blood vessel) disease, and skin issues. 2-4. It is still unclear how lupus may be different in men compared to in women.

Is Lupus different in men or women?

It is still unclear how lupus may be different in men compared to in women. Some studies found that men have more seizures, immune-related anemia, thrombogenesis, and chest pain (pleuritis), but less dry eye (Sjogren’s syndrome). Other studies found little statistical difference between the symptoms of the sexes.

Is There a Difference?

Still, some differences were noted .

Why is Lupus more prevalent in women?

So, the higher levels of estrogen in women may — may — be one reason why the disease is more prevalent in females. Low levels of androgen in men are thought to connect to the development of the disease in males. Whatever the reason, it is important to remember that lupus isn’t solely associated with women and that men can get the disease, too.

How many people have lupus between 15 and 45?

And while the prevalence of lupus in women is great — nearly 90% of lupus patients between ages 15 to 45 are women — men shouldn’t discount both the potential of getting lupus and the seriousness with which the disease presents. 1 ?. Hero Images / Getty Images.

Is lupus erythematosus a woman's health issue?

Though systemic lupus erythematosus is often thought of as a women’s health issue, the truth is men get lupus, too .

Is lupus the same in men and women?

Seizures. And while those differences may exist, lupus’ similarities in men and women, especially with regard to symptom manifestations, are many. For example, while discoid lupus may be more common in males, lesions look the same in both sexes. Signs and Symptoms of Lupus.

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Do men and women have Lupus?

Still, some differences were noted .

How common is lupus and who does it affect?

The Lupus Foundation of America estimates that 1.5 million Americans, and at least five million people worldwide, have a form of lupus.

What are the 4 different forms of lupus?

In approximately half of these cases, a major organ or tissue in the body, such as the heart , lungs, kidneys, or brain will be affected. [1]

What is the impact of health disparities on people with lupus?

Lupus is two to three times more prevalent among African American, Hispanic/Latina, Asian American, Native American, Alaska Native, Native Hawaiian and other Pacific Islander women than among White women. [2] Recent research indicates that lupus affects 1 in 537 young African American women.

Can people die of lupus?

It is believed that between 10-15 percent of people with lupus will die prematurely due to complications of lupus. [2] However, due to improved diagnosis and disease management, most people with the disease will go on to live a normal life span.

What are the economic impacts of lupus?

A 2016 study published in Nature Reviews Rheumatology found that the average annual direct health care costs of a person with lupus was $33,223. [7]

What is the role of genetics in lupus?

Genes do play a role in the predisposition to the development of lupus. There are dozens of known genetic variants linked to lupus. These genes impact both who gets lupus and how severe it is.

How long does it take to get diagnosed with lupus?

There are many challenges to reaching a lupus diagnosis. Lupus is known as "the great imitator" because its symptoms mimic many other illnesses. Lupus symptoms can also be unclear, can come and go, and can change.

Does lupus affect men and women differently?

While lupus is much less common in men, males often experience more severe disease, including kidney disease and serositis (inflammation of the tissues lining major organs). Sudden onset of symptoms is more common in males. Men are usually diagnosed later than women, often between their 50s and 70s. Men with lupus have higher rates of cardiovascular disease, strokes, and cancer. Women develop more infections and osteoporosis. 3

What is the most common complication of lupus?

Lupus nephritis (kidney disease caused by lupus) is the most common severe complication

What percentage of lupus cases are in children?

10 percent of all lupus cases occur in children and children tend to have kidney and neurological issues

How many people have Lupus?

The Lupus Foundation of America estimates that 1.5 million people in the US, and 5 million worldwide, have a form of lupus. It most often strikes women of child-bearing age, but men, children, and seniors may also develop lupus.

Is Lupus a chronic disease?

Lupus is a chronic, autoimmune disease that causes the immune system to attack healthy tissue, causing inflammation and pain. It can be mild or quite severe. The skin, joints, and internal organs are most commonly affected, but any part of the body can be damaged by lupus.

Is Lupus more severe in black women?

Lupus tends to be more severe and occur at earlier ages among black and other minority women. Minority women also tend to experience more severe kidney disease, more serious complications, and less social support compared to white women with lupus. 2

Do Hispanics have more lupus?

Hispanics also seem to have more severe lupus, more organ damage, and more comorbidities (multiple chronic diseases) such as cardiovascular issues (heart attack and stroke). White children tend to have less severe disease than other ethnicities.

What is the ratio of female to male in lupus?

In adults, the female to male ratio is about 9 – 1. But in pediatric lupus (lupus in children under 12) the ratio changes; it is more common to find lupus in boys than in men. The female to male ratio in pediatric lupus is closer to three out of every five.

Is lupus more common in young children?

The good news is that pediatric lupus is far less likely to occur in young children than in adults , although doctors are also slower to diagnose the disease because it is so rarely seen. This can mean that symptoms become severe before they are properly treated. But unlike adults, the types of symptoms do not vary according to gender; girls and boys tend to show the same signs of lupus, mostly the sort of things common to many childhood illnesses: persistent fever, aches and constant lethargy and fatigue.

Can lupus be diagnosed in boys?

Lupus in boys is rare, but it does occur. Early symptoms could result from a number of different illnesses, and are not necessarily a cause for concern. All the same, the right combination of symptoms is a strong indicator of pediatric lupus, whether the child is male or not. Doctors who specialize in pediatric autoimmune diseases can develop a treatment plan that is age-appropriate and takes growth and development into account, as well as gender.

Do boys have lupus?

Signs of lupus do not differ noticeably in boys and girls, but instances of pediatric lupus do differ by ethnicity. Compared to white children, African American children are almost twice as likely to develop lupus, a factor doctors take into account when investigating persistent symptoms of illness. A family history also greatly increases the chances of pediatric lupus; in boys especially, it is important for the parent to provide the doctor with the child’s full medical history.

What are the symptoms of lupus?

There are also examples of lupus symptoms that men seem to get less frequently and severely than women. These include: 1 Fibromyalgia: This overlap disease is far more common in women with lupus than with men. 2 Alopecia or Hairloss: The damage to skin and hair from lupus seems to be less dramatic in men than women. Also, discoid lupus of the scalp, not elsewhere, is more frequent in women than men. It is important to note that scarring from skin lesions is about the same for both men and women. 3 Thrombocytopenia: This condition refers to a low platelet count that affects the ability to create blood clots and control bleeding. This occurs more often in women and can cause increased bruising, nosebleeds and tiny red blood spots, especially on the legs. 4 Neurological Disease: There are too many to describe here and not all are less important to men with lupus, but in general, beyond seizures, men seem to experience fewer neurological symptoms than women. 5 Arthritis: On average, men seem to be less likely to show symptoms of arthritis, though both equally experience non-arthritic joint pain. 6 Malar (Butterfly) Rash: Though men are more likely to have discoid lupus and severe skin lesions, they are less likely to show the malar rash than women. 7 Sjogren’s Syndrome: Men are more likely to have peripheral neuropathy and hemolytic anemia that may make their hands and feet feel cold, yet, they are less likely than women to have the overlapping condition of Sjogren’s syndrome.

How often does lupus occur in women?

The College of Rheumatology simply states that lupus occurs 10 times more often in women than men. Clearly, many more women are diagnosed with lupus than men. However, all of the disagreement and uncertainty in the percentages is a sign that much more needs to be learned about men with lupus.

Why do men get lupus less often than women?

Interestingly, from a researcher’s perspective, the very fact that there are differences between men and women with lupus gives the medical community a place to start looking for answers. The genetic and hormonal differences between men and women may hold the ultimate clues for the basic causes of lupus in everyone … and this gives us the best opportunities to find a cure! If there were no gender differences surrounding lupus, finding the root causes might be much more difficult.

How many men have lupus?

Given that some estimates for the number of individuals, both male and female, with lupus is 1.5 million in the U.S., we could estimate the number of men with lupus to be approximately 150,000. Yet, not everyone agrees with those numbers. According to the National Resource Center on Lupus, it is estimated that between 4% and 22% of those with lupus are male. The Centers for Disease Control (CDC) uses different statistics and estimates that there are 4 to 12 women with lupus for every 1 man. The College of Rheumatology simply states that lupus occurs 10 times more often in women than men.

Why are there differences between men and women with Lupus?

Here are some of the current theories as to why there is a difference between men and women with lupus: Women, in general, have a stronger immune reaction to many threats than men . Research shows that women produce more antibodies in response to infections, injuries and even vaccinations than men produce.

What causes shortness of breath and pain in men?

Pleurisy or Pleuritis: Men have greater issues around lung conditions, including pleuritis, an inflammation of the thin membranes around the lungs that causes shortness of breath and pain.

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How to raise awareness about Lupus?

Raising Awareness About Lupus 1 Online information#N#external icon#N#is available on SLE signs, symptoms and diagnosis, lupus care and self-management, and lupus resources. 2 Be Fierce. Take Control.#N#external icon#N#is a campaign that raises awareness and knowledge of lupus symptoms in Black and Latina women aged 18 to 25 to help with early diagnosis. 3 Understanding Lupus#N#external icon#N#is a bilingual training program for promotoras (Latina community health workers) to increase awareness and understanding of SLE signs and symptoms in Latino communities. 4 Playbook Project#N#external icon#N#is a step-by-step guide for community and student organizations with a campaign and detailed activities to spread key awareness messages about SLE. 5 Nurses in K–12 schools are trained to care for students with SLE and support the shift from pediatric to adult care.

How common is lupus erythematosus?

The most common type, systemic lupus erythematosus (SLE), affects about 204,000 US adults. Anyone can develop SLE, but it is more common in Black and Latina women and women of childbearing age (15–44 years). The causes of SLE are unknown but are thought to be related to genetic, environmental, and hormonal factors.

What is a bilingual training program for promotoras?

is a bilingual training program for promotoras (Latina community health workers) to increase awareness and understanding of SLE signs and symptoms in Latino communities. is a step-by-step guide for community and student organizations with a campaign and detailed activities to spread key awareness messages about SLE.

Why is SLE so hard to diagnose?

SLE is hard to diagnose because the symptoms are often mistaken for those of other diseases. Symptoms range from mild to severe, the most common being fatigue, skin rashes, fevers, and pain or swelling in the joints.

What is the CDC funding?

CDC funds the Lupus Foundation of America and the American College of Rheumatology to raise awareness about lupus and improve knowledge and skills among providers and self-management skills among patients.

How many times more likely are women to have SLE than men?

Results from the registries show that women are 8 times more likely than men to have SLE. Among women, Black women are 3.3 to 4.2 times more likely and Latina women are 1.6 to 2.2 times more likely to have SLE compared with White women.

What is SLE online?

is an online program that teaches people with SLE how to work with their health care team and manage symptoms, stress, and medicines.

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